Why Whole-Family Support Matters for Kids With Autism

Why Whole-Family Support Matters for Kids With Autism

Children with autism who work with Board Certified Behavior Analysts in a therapeutic ABA setting learn skills that help them function independently. These kids never work in a vacuum, since the long-term goal is the effective transfer of these skills from the ABA therapy center to their wider world.

In fact, ABA therapy can be more satisfying and effective when the whole family gets involved.

What Does Family Support for Autism Look Like?

Family support can include a wide range of elements, and each family needs something unique.

Potty training is a great example. Often, children find success in clinical settings but not as much in their home environment. Clinicians can work with parents to develop a plan that extends into a child’s home and school life.

With a goal to promote independence across all environments, therapists work with families to increase effective communication between parents, siblings, and the child with autism.

Oftentimes children won’t have developed language skills and ABA therapists come up with a communication system that parents can use. Whether it’s verbal, limited sign language, or picture exchanges, these methods can be used at home.

Parent-Therapist Communication

Maintaining therapeutic practices at home and not just in clinical settings is crucial for ABA therapy to have a life-changing impact.

Family involvement can start with the simple process of sharing with parents what the child is working on in the ABA therapy setting. As new families get familiar with the basics of ABA therapy, it really helps them understand what they can do at home, like how to respond to tantrums.

In some cases, just having help in creating a morning or nighttime routine can make all the difference to everyone in the family. Ideally, parents and families make time to meet or talk with therapists on a weekly basis, though many parents have busy schedules.

ABA Therapy from IABA Consultants

If you have questions regarding autism treatment with ABA therapy, we are here for you! Our goal is to make sure no family is turned away due to financial constraints. Our therapy team would love to talk to you. Find the location closest to you and give us a call. We’re here for you.

Sources: Chicago Parent Magazine

Getting Started with ABA Therapy

Getting Started with ABA Therapy

Applied behavior analysis (ABA) therapy is administered by professionals. As a parent, you play an important role in choosing the right person to help your child. But your work won’t stop when the professional begins.

Effective ABA therapy for people with autism spectrum disorders (ASD) relies on active parent participation. You help your child to learn around the clock, even when the technician isn’t present.

You’ll have plenty of training to help you get started. You won’t be in this alone. But following a few basic do’s and don’ts can ensure your child gets the most out of therapy.

Finding the Right ABA Professional

Before you can play a role in your child’s ABA therapy, you’ll need someone to guide the process. That person is a therapist, and as a parent, you have the power to choose the right person.

Therapists certified by the Behavior Analyst Certification Board will have the letters BCBA after their names. Someone like this is qualified to create and oversee the treatment plan for your child.

Registered behavior technicians (RBTs) carry out the treatment plan that is created by a BCBA therapist. RBTs should be supervised by a BCBA through regular meetings, written reports, or both.

Parent Participation in ABA Therapy Is Critical

Researchers say that treatment works best when parents stay engaged. You know your child better than anyone else does, and you spend the most time with them. You’re in the perfect position to help tailor treatment and encourage skill-building.

You’re not expected to know everything about ABA therapy when treatment begins. Your child’s therapist is your guide. This is why it’s important to find a therapist you can trust. You will learn all about therapy goals and how you can help.

Ask your therapist for help with anything that seems unclear. They are there to guide you through the process.

ABA Therapy Best Practices

Follow best practices to ensure that your child has the best ABA therapy experience possible.

Throughout your child’s ABA therapy journey, you should:

  • Help yourself. Juggling work, childcare, education, and ABA therapy isn’t easy. Reach out to ASD support groups, experts suggest. In these groups, you can connect with others who are also dealing with these responsibilities. You may pick up tools and tricks that help you cope.
  • Practice everywhere. The more frequently your child can practice in novel situations, the better, experts say. Use shopping trips, car rides, doctors’ appointments, and church services as opportunities to solidify ABA therapy lessons.
  • Ask for progress reports. A child in ABA therapy should learn new skills and behaviors. You should see these in action as you move through each day with your child. You’ll see improvements in virtually every area of life, including academics, socialization, and day-to-day functioning. But your child’s therapist should also craft reports you can read and understand. Tracking data helps professionals to determine the next steps in the treatment plan.
  • Listen to your child. ABA therapy can be fun, enticing, and even a bit exciting. If your child seems nervous, scared, or angry, pay attention. You may need a different technician or a modification to the approach. It doesn’t necessarily mean that ABA therapy isn’t a good fit for your child. The approach might just need to be altered somewhat. Talk to your child’s technician about any issues that arise.
  • Ask for feedback. You’re part of the treatment team, and you are working hard. Ask your technician for advice about your role. Are you handling the work properly? Where can you improve?

Many parents enjoy ABA therapy. They look forward to the appointments, and they feel pride as their children learn and grow.

While parents are often involved in therapy sessions, they also have the opportunity to relax a bit as technicians take the wheel in these sessions. Parenting a child with autism is a full-time job. Getting hands-on guidance from a professional on a consistent basis can be invaluable.

You will have ups and downs in progress. That’s expected. But follow these steps, and you might like the therapy as much as your child does.

What to Avoid During ABA Therapy

Parents of children with ASD have plenty of tasks to tackle, and everyone makes mistakes now and again. You won’t be the perfect parent or caretaker. No one is. But avoiding some common mistakes as much as you can help your child.

As ABA therapy progresses, avoid:

  • Skipping appointments. Your calendar is packed tight, and it’s tempting to let one or two visits slide. Avoid that temptation. Your child needs many meetings with professionals to get better and make progress. When appointments are skipped, your child may lose the progress they have made thus far. This means a longer treatment timeline and slower results. Don’t let therapy take a backseat to other obligations.
  • Certain punishments. It’s easy to think that negative reinforcement is the best way to stop undesirable behavior, but it’s been shown to have the opposite effect. ABA therapy uses rewards for positive steps, and certain responses are used to discourage negative behavior. Behavioral technicians do not use physical punishment when kids don’t comply. This is a common misunderstanding among therapists and parents, experts say. If you’re not sure how to handle negative behavior, ask your therapist. Therapy should be fun, so kids will participate without coercion.
  • Backsliding. Consistency makes for effective ABA therapy. Kids should know what will happen and when. It’s tempting to let your child bend the rules now and then just to avoid a discussion. But doing so makes the lesson harder to grasp. Stick with the plan your therapist outlined.
  • Accelerating. ABA therapy is built on a series of very small steps that a child masters one by one. You can see the goal in sight, but your child might not see it yet. Don’t push your child to do anything they don’t understand quite yet. Be patient and let the therapy work. It takes time, but the gains are well worth it.
  • As with most things, there is a learning curve with ABA therapy. With more sessions, you’ll feel more confident in the approach, and you’ll be better able to reinforce the lessons learned in sessions.

Everyone makes mistakes. If you slip, don’t berate yourself. But look for ways to start fresh tomorrow, so you can help your child as much as possible.

ABA Therapy from IABA Consultants

If you have questions regarding autism treatment with ABA therapy, we are here for you! Our goal is to make sure no family is turned away due to financial constraints. Our therapy team would love to talk to you. Find the location closest to you and give us a call. We’re here for you.

Sources

Sprout Therapy ABA Information

Beautiful Truth

Beautiful Truth

Okay, so at this point, you and the nation might be sick of the quote from Glennon Doyle about the cheetah realizing she is not crazy, she is trapped from her wild. I’m going to pre-apologize for bringing it up again if you are one of the people sick of that quote, but it’s a foundational piece of wisdom for me.

I’m going to do a quick recap for those of you who haven’t read,” Untamed.” Tabitha is a cheetah at a zoo who Glennon observes regally pacing the cage. Glennon goes on with the narrative that perhaps Tabitha believes herself to be crazy, dreaming of the hunt and ink-black skies. Glennon writes, “you’re not crazy, you’re a goddamn cheetah.” In this chapter, Glennon writes that when you feel you are crazy and your gut tells you that perhaps you are sane you should always consider that you are not, in fact, crazy; maybe something is wrong on the outside and there nothing is wrong with you.

Hearing Yourself

Last week I wrote to you about setting boundaries and quieting the noise from the stands of the outside world. I want you to become quiet so you can hear yourself. When we are taking in the messages from other people, especially when those messages are loud and shaming, we lose ourselves–our wildness. In losing yourself, the people in the stands start to decide how your life goes and they do not always have your best interest at heart; they have theirs. Above all else, it is incredibly important to never lose who you are and to be able to come home and listen to the voice in your heart that guides you.

As an empath, I really, really do not like looking at injustice. When I see something that tells me justice is at risk I take on the emotions of others. I want to put myself in their shoes, hear their story, and feel the pain of those experiencing the injustice so I know what to do next. For this reason, looking at injustice is incredibly hard but also incredibly important for me. I have to put in a lot of self-care and take time grounding myself before I approach circumstances in life that need to change for the better. When I don’t start by grounding myself I’m pretty sure I come off wild when approaching an injustice. But my wildness doesn’t make me crazy, I’m a goddamn cheetah.

I know many other people that take on the emotions and opinions of others only to find themselves lost. Personally, as a survivor of domestic violence, I know what this feels like firsthand. In speaking up about domestic violence in a rural setting I’ve been met with adversities I didn’t know were possible. Leaving the abuse was the hardest thing I had done until that point. Walking into a system that is not yet set up to tackle the many forms of domestic violence is harder.

Helping Others, Helping Yourself

I’m very lucky with my line of work. When I see basic needs or an injustice that needs attention, care, and a new level of support I get to choose how I approach it. I know I take on the emotions of others who are suffering (joy as well, but suffering is what I want to fix…) so I’m able to check myself in a professional setting. I’ve spent almost a decade as a business owner learning how to do this. In the beginning, it wasn’t pretty, there was a lot of puffing up and shrinking down that I wrote about last week. Now I know that staying true to myself is the number one thing I can do in order to design systems from my company (and the world) that truly create lasting change.

Staying true to myself personally has been much harder these past five years. In reclaiming my voice over the past seven months I’ve definitely puffed up and shrunk down all the while asking for the grace to stand my sacred ground. Breathing deeply into my belly to remember I’m a goddamn cheetah, as I’m unfortunately met with victim shaming and miseducation surrounding domestic violence. Just yesterday I was asked to say, “domestic abuse,” because violence misleads everyone and makes them uncomfortable.

Do you know what makes me uncomfortable? People being violent or abusive to other people. Not the goddamn word a survivor chooses to use about their own experience.

Giving Grace to Others

It is in remembering my wild and personal experiences that I know all people deserve to live free of injustice. This has given me the strength to apply care to myself in order to do personally what I’ve done professionally for so many years. I have to give grace to those in the stands with especially ugly jeers because they have not yet woken up. They are afraid, uncomfortable, and they are lashing out. If I took their screams as gospel I would lose my life. I almost did less than a year ago.  

Remembering that I am a good, kind, passionate, smart woman helps me wash the dust off my bloody knees as I stand against these crowds and respond. Not responding with hate to their noise but with love for myself. It’s easier for people to tell us we’re crazy and dismiss our life experiences that cause them discomfort. Accountability can feel life-threatening to those lost in shame or guilt. Accountability also means the just will prevail while the unjust fail. Those who hold perceived power over others just to keep it (and other resources) for themselves are loud as fuck. What they lack, however, is kindness. You and I, gleaming cheetahs, are filled with kindness and love. We do not deserve to be gaslit away from a life that is worth living, our voices tamed. We deserve to be heard and loved.

Stop the victim shaming. May all women, men, and children be free and safe. Fight for who you are and a world worth living in and a world worth leaving behind for our children.

Xoxo,

Jessie

ABA Therapy Basics (Part 2)

ABA Therapy Basics (Part 2)

CLICK HERE FOR PART 1

What Does an ABA Program Involve?

Good ABA programs for autism are not “one size fits all.” ABA should not be viewed as a canned set of drills. Rather, each program is written to meet the needs of the individual learner.

The goal of any ABA program is to help each person work on skills that will help them become more independent and successful in the short term as well as in the future.

Planning and ongoing assessments are essential parts of a good ABA therapy program. A qualified and trained behavior analyst (BCBA) designs and directly oversees the program. They customize the ABA program to each learner’s skills, needs, interests, preferences, and family situation. 

The BCBA will start by doing a detailed assessment of each person’s skills and preferences. They will use this to write specific treatment goals. Family goals and preferences may be included, too.

Treatment goals are written based on the age and ability level of the person with ASD. Goals can include many different skill areas, such as:

  • Communication and language
  • Social skills
  • Self-care (such as showering and toileting)
  • Play and leisure
  • Motor skills
  • Learning and academic skills

The instruction plan breaks down each of these skills into small, concrete steps. The therapist teaches each step one by one, from simple (e.g. imitating single sounds) to more complex (e.g. carrying on a conversation).

The BCBA and therapists measure progress by collecting data in each therapy session. Data helps them to monitor the person’s progress toward goals on an ongoing basis.

The behavior analyst regularly meets with family members and program staff to review information about progress. They can then plan ahead and adjust teaching plans and goals as needed.

ABA Techniques and Philosophy

Instructors use a variety of ABA procedures. Some are directed by the instructor and others are directed by the person with autism.

Parents, family members, and caregivers receive training so they can support learning and skill practice throughout the day.

The person with autism will have many opportunities to learn and practice skills each day. This can happen in both planned and naturally occurring situations. For instance, someone learning to greet others by saying “hello” may get the chance to practice this skill in the classroom with their teacher (planned) and on the playground at recess (naturally occurring).

The learner receives an abundance of positive reinforcement for demonstrating useful skills and socially appropriate behaviors. The emphasis is on positive social interactions and enjoyable learning.

The learner receives no reinforcement for behaviors that pose harm or prevent learning.

ABA is effective for people of all ages. It can be used from early childhood through adulthood!

Who is Qualified to Provide ABA services?

A board-certified behavior analyst (BCBA) provides ABA therapy services. BCBAs are required to have either a master’s degree or PhD in psychology or behavior analysis and be licensed in the state they practice in.

ABA therapy programs also involve therapists, or registered behavior technicians (RBTs). These therapists are trained and supervised by the BCBA. They work directly with children and adults with autism to practice skills and work toward the individual goals written by the BCBA. You may hear them referred to by a few different names: behavioral therapists, line therapists, behavior tech, etc.

Does ABA Therapy Work?

ABA is considered an evidence-based best practice treatment by the US Surgeon General and by the American Psychological Association. 

Evidence-based means that ABA has passed scientific tests of its usefulness, quality, and effectiveness. ABA therapy includes many different techniques. All of these techniques focus on antecedents (what happens before a behavior occurs) and on consequences (what happens after the behavior). 

More than 20 studies have established that intensive and long-term therapy using ABA principles improves outcomes for many but not all children with autism. “Intensive” and “long term” refer to programs that provide 25 to 40 hours a week of therapy for 1 to 3 years. These studies show gains in intellectual functioning, language development, daily living skills and social functioning. Studies with adults using ABA principles, though fewer in number, show similar benefits.

Is ABA Covered by Insurance? 

Sometimes. Many types of private health insurance are required to cover ABA services. This depends on what kind of insurance you have, and what state you live in.

All Medicaid plans must cover treatments that are medically necessary for children under the age of 21. If a doctor prescribes ABA and says it is medically necessary for your child, Medicaid must cover the cost.

ABA Therapy from IABA Consultants

If you have questions regarding autism treatment with ABA therapy, we are here for you! Our goal is to make sure no family is turned away due to financial constraints. Our therapy team would love to talk to you. Find the location closest to you and give us a call. We’re here for you.

Sources

Autism Speaks ABA Primer

Stand Your Sacred Ground

Stand Your Sacred Ground

At this point in my writing, I’m pretty sure that my readers are aware I’m a Brene Brown junkie. Glennon Doyle is becoming a close second. I quote Brene often and today is no different. Brene often writes about how some of the kindest and most compassionate people have the strongest boundaries. I got a little piece of advice from her work that I’ve been trying to hone since I read it; “don’t puff up, don’t shrink down, stand your sacred ground.”

Let’s dig in.

Learning Where the Ground Is

As a business owner, I have worked with a lot of people over the years. It’s taken me almost a decade to build a team and business that is reflective of my vision. My company isn’t perfect by any means but it is an honest place to work and truly wants what is best for each life that comes to it. Creating the team and company I have today is a story for another time but it is where I first used the “stand your sacred ground” advice.   

I was a young business owner and fully passionate woman, who opened this big heart of mine and let pretty much everyone in during the first several years of business. I thought everyone had good intentions in the workplace and was genuinely proud of the work they did. I was taken advantage of both by employees and clients in the early years. A lot.

Employees would overpromise and underdeliver. Clients would not pay their bills or follow treatment guidelines. The combination of these two things had me spinning.  And when I spin, to this day, I have two go-to reactions:

  1. Get extremely anxious and overtalk my problems with my tribe then create chaos around the problem or
  2. Lash out.

This cycle is miserable for me and everyone around me. This is also where the “sacred ground” phrase began to help.

Self-Care, Sacred Ground

Several years ago I would see that I was spiraling into my pattern of shrinking down with anxiety. I decided to start inserting self-care practices to stand my sacred ground. This is where I first found some of my boundaries and that these boundaries are kind. It’s also where I first experienced that even when you are setting a boundary that is kind and right for you others may not see it that way. The self-care I created was often to emotionally recharge myself after a person lashed out, ignoring a boundary I had set. Other people’s discomfort is uncomfortable to me!

In my personal life, this ‘recipe of authenticity,’ if you will, is much harder to navigate. In the work world, for whatever reason, I’m able to shut out how others perceive me when I stand my sacred ground. I still feel for them when my boundaries cause discomfort, but I don’t absorb it as my own emotion. Personally, it’s incredibly difficult for me to not absorb others’ emotions as I set boundaries. It can even be painful to lose those I love if a boundary I set means we cannot be in a relationship anymore.

In staying true to myself and my vision of kindness I have to hold myself accountable to the boundaries that support my values. In staying safe as a trauma survivor, I know that holding boundaries can literally be life-saving. It’s also incredibly hard even though I wish it weren’t so. By standing my sacred ground I am asking that others in my life honor my person, my needs, and my heart. I also firmly hold a boundary that I will not be in relationships with anyone who stands actively or ideally by abusive behavior.

Reading this may make standing your sacred ground sound simple. I assure you, it’s not. I do not live in a vacuum and neither do you. The unfortunate truth is that abusive behavior is rampant in our society with subgroup after subgroup rationalizing it. As I clawed my way out of a cycle of abuse this fall I didn’t have my sacred ground firmly in place. I barely had myself. Today, I have my true self again but it was a struggle to find the foundation for my sacred ground. I was terrified of who I would lose. I should have been looking at all that I could gain.

Standing on Sacred Ground

My sacred ground has saved my life, yet the lesson to get here was steep. I’m still working on this, unpacking how to stand my ground without becoming anxious. But this I know to be true; your sacred ground is sacred to you. You are allowed to ask for what you want and need. What you want and need should not take from others and instead should propel you forward into the truest version of yourself. And the truest version of yourself isn’t built on the backs of others. 

We are all the same. Wishing and hoping for the best life possible for ourselves and our families. Baby, it’s in here, in your beautiful heart, the life you want and deserve. If those around you cannot honor your heart, your spirit, and your desires, it’s OK to say goodbye. If those around you do not respect your safety, you must say goodbye no matter how painful it may be. You need not shrink down, you need not puff up, your sacred ground is waiting to welcome you home to a life beyond your wildest dreams.

May all people be happy, safe, and free.

Xoxo,

Jessie

ABA Therapy Basics (Part 1)

ABA Therapy Basics (Part 1)

What is Applied Behavior Analysis? Applied Behavior Analysis (ABA) is a therapy based on the science of learning and behavior.

Behavior analysis helps us to understand:

  • How behavior works
  • How behavior is affected by the environment
  • How learning takes place

ABA therapy applies our understanding of how behavior works to real situations. The goal is to increase behaviors that are helpful and decrease behaviors that are harmful or affect learning.

What Does ABA Therapy Help With?

  • Increase language and communication skills
  • Improve attention, focus, social skills, memory, and academics 
  • Decrease problem behaviors

The methods of behavior analysis have been used and studied for decades. They have helped many kinds of learners gain different skills – from healthier lifestyles to learning a new language. Therapists have used ABA to help children with autism and related developmental disorders since the 1960s.

How Does ABA Therapy Work?

Applied Behavior Analysis involves many techniques for understanding and changing behavior. ABA is a flexible treatment:  

  • Can be adapted to meet the needs of each unique person
  • Provided in many different locations – at home, at school, and in the community
  • Teaches skills that are useful in everyday life
  • Can involve one-to-one teaching or group instruction

Positive Reinforcement & ABA Therapy

Positive reinforcement is one of the main strategies used in ABA. When a behavior is followed by something that is valued (a reward), a person is more likely to repeat that behavior. Over time, this encourages positive behavior change.

First, the therapist identifies a goal behavior. Each time the person uses the behavior or skill successfully, they get a reward. The reward is meaningful to the individual – examples include praise, a toy or book, watching a video, access to a playground or other location, and more.

Positive rewards encourage the person to continue using the skill. Over time this leads to meaningful behavior change. 

Antecedent – Behavior – Consequence

Understanding antecedents (what happens before a behavior occurs) and consequences (what happens after the behavior) is another important part of any ABA program.

The following three steps – the “A-B-Cs” – help us teach and understand behavior:

  1. An antecedent: this is what occurs right before the target behavior. It can be verbal, such as a command or request. It can also be physical, such a toy or object, or a light, sound, or something else in the environment. An antecedent may come from the environment, from another person, or be internal (such as a thought or feeling).
  2. A resulting behavior: this is the person’s response or lack of response to the antecedent. It can be an action, a verbal response, or something else.  
  3. A consequence: this is what comes directly after the behavior. It can include positive reinforcement of the desired behavior or no reaction for incorrect/inappropriate responses.

How ABA ABCs Help

How different consequences could affect whether the behavior is likely to happen again

EXAMPLE:

Antecedent: The teacher says “It’s time to clean up your toys” at the end of the day.

Behavior: The student yells “no!”

Consequence: The teacher removes the toys and says “Okay, toys are all done.”

How could ABA help the student learn a more appropriate behavior in this situation?

Antecedent: The teacher says “time to clean up” at the end of the day.

Behavior: The student is reminded to ask, “Can I have 5 more minutes?”

Consequence: The teacher says, “Of course you can have 5 more minutes!”

With continued practice, the student will be able to replace the inappropriate behavior with one that is more helpful. This is an easier way for the student to get what she needs!

ABA Therapy from IABA Consultants

If you have questions regarding autism treatment with ABA therapy, we are here for you! Our goal is to make sure no family is turned away due to financial constraints. Our therapy team would love to talk to you. Find the location closest to you and give us a call. We’re here for you.

Sources

Autism Speaks ABA Primer