Long trips and vacations with kids can be difficult. Keeping a child occupied and calm during a trip requires patience and preparation. Keeping a child with autism occupied and calm during a trip may require some extra patience and planning.
This article is going to go over tips, tricks, and good general information on traveling with an autistic child. The two sections in this article will include information on road trips and air travel, as both have unique challenges.
Tips for Flying with a Child with Autism
Air travel is a big change for any child with autism. The sensory overload that accompanies every flight can be a huge challenge. The noise, the pressure, the small area, and the regimented process are all obstacles that a family will need to prepare for before a flight.
Before flying with an autistic child, you will want to consider taking the following actions:
- Prepare Weeks (or Months, if possible) Ahead. Talk with your child’s therapist or doctor about how to best start the process of preparing for a flight. Getting a plan together early on will help remind you about things you may need to prepare your child for.
- Create a Calendar. Having a visual indicator for your child to see indicating the upcoming trip can help them prepare for the change.
- Talk to Your Child About the Flight. Go over all the information about planes, airports, and travel you have planned with your child before the trip. Ask your child questions about the trip and make sure they have an understanding of the upcoming trip.
- Pack Essentials. Make sure to pack any of your child’s favorite toys, activities, and snacks before the flight. Remember that liquids over 3oz. cannot be brought through airport security!
- Pack Entertainment. Make sure your child has their favorite long-term toy or activity-packed. Focusing on something they love can make the long trip seem much shorter.
- If Your Child Has Special Needs: Talk to the Airline or Airport Before Your Flight. If your child needs special treatment or has other needs not normally provided or permitted by airlines, make sure to call them as early as possible! Airlines can be very accommodating, so make sure to talk to your airline about any and all of your child’s needs.
- Do a Practice Airport/Airline Security Run. Talk to your child’s therapist or pediatrician about the best ways to simulate an airport or airport security. Devise a plan and make sure your child is as prepared as they can before the real thing.
Road Trips & Autism
Taking a trip or going on a car vacation is much easier than flying for a child with autism. This doesn’t, however, mean it will be a walk in the park!
Leaving home and routine behind is difficult for children. Taking a child with autism out of an expected routine and schedule will take some preparation to mitigate emotions.
Just like with flying, there are some things you can do prior to a road trip to help ease the apprehensions of your child:
- Create a Calendar. Giving your child a visual indicator for when they will leave home can help them understand when the trip will start.
- Talk to Your Child & Communicate the Trip Plans. Creating an understandable narrative around where & why you are traveling can help your child understand what is happening. Ask them questions about the trip, answer their questions about the trip, and be sure to emphasize the things they will enjoy!
- Have Your Child Help Prepare for the Trip. Helping mom or dad is always fun, especially when it’s for something special. Having your child help you with packing or preparing the car for the road trip may be a great way to imbue an understanding of what to expect.
- Show Pictures of Hotels or Houses You’re Staying At. Make sure to familiarize your child with your destination and what they can expect when you get there. If you are staying with relatives, contacting them to prepare a room, followed by sending pictures of the prepared space, can make your child understand where they are staying is safe.
- Pack the Essentials. This is imperative for any road trip–a car has fewer accommodations than a plane, namely, there are no snacks & no bathrooms. Be sure to pack all of your child’s favorite toys and activities along with a cooler filled with favorite snacks & drinks.
- Schedule Gas Station/Rest Area Stops. Letting your child know when you will be stopping can help them understand the length of the trip. Creating a visual calendar of stopping times/points can help even more.
Make sure to make your car as comfortable as possible for any road trip. Bringing favorite comfy blankets or pillows can help your child feel more at home in the car.
ABA Therapy from IABA Consultants
If you have questions regarding autism treatment, education, or plans to use ABA therapy, we are here for you! Our goal is to make sure no family is turned away due to financial constraints. Our therapy team would love to talk to you. Find the location closest to you and give us a call. We’re here for you.
Over the course of that last month, I’ve written to you about finding joy amidst hardship, living through pain, leaving domestic violence, and navigating fear. This is not a light load for anyone to take, let alone write about. Outside of my own personal experiences, I know that the people I love (and the world) are carrying hardship too.
LIfe has always had joy, pain, happiness, sorrow, and other dualities. Add a 2+ year pandemic to any of those feelings and we have an additional ongoing hardship to navigate in addition to life being, well, life. How are we surviving and how can we thrive during this time? I don’t know the answer to that but I do know that taking care of our own hearts, bodies, and spirits is truly the only option to get through it.
Taking Care of Yourself
I’ve been a healthcare professional for longer than I’d like to admit (15 years and counting). Over the course of my time with an active caseload, I cannot tell you how many times I repeated the age-old line “you have to put your oxygen mask on first!” when talking to exhausted caregivers of children with behavioral disorders. Fast forward a decade to when I became a mommy and joined the bandwagon of “self-care isn’t selfish, really!” as I carved out time for myself to have enough capacity to raise my little men. Talking the talk is easy to do and going through the motions of self-care has also been extremely publicized over the years.
Need more you time? Pour a glass of wine. Exhausted? Slip into a hot bath. Don’t miss the gym! Press that green juice. Where is your yoga mat? Society and marketing firms have a list of activities that we all can do in order to recharge our batteries and put ourselves first. While we might actually enjoy some of these activities, these slogans and lists completely miss the mark.
You see, all the slogans are telling us that we could actually be more perfect at taking care of ourselves in addition to a mounting list of things to do in order to live the ‘ideal’ life. Perfectionism is not in short supply these days. Neither are product lines nor marketing companies that profit from our deep dives into perfectionism and trying to be ‘good enough.’
In short, the way society (and I) used to talk about self-care is a one size fits all methodology, but one that can actually leave us more exhausted than relaxed. But self-care is really important, and recharging is essential during well, life, and times of high stress. So how do we fill these needs for ourselves? How do we take care of our beautiful but exhausted hearts, spirits, and bodies? My first piece of advice has literally gotten me through my entire life (the good, the bad, and the ugly). Ready for it? My mother would be shocked. Don’t listen to anyone. Like anyone.
Listening to Your Real Needs
I mean I can apply “don’t listen to anyone” to most facets of my life (it’s not always right!) but in regards to self-care I know I’m on to something. How could anyone from the outside world tell you how to take care of yourself when our needs as humans come from inside of our bodies and spirits? The only voice that can actually tell us what we need to recharge is our own. When we need it, how we need it, what feels good, what doesn’t, and so on. Self-care looks like being a guardian of your own energy and putting what your heart, spirit, and body need before the needs of others. Yes, even your children and especially every other person you love.
In a world where we are buzzing and being “so busy,” simply saying, “firm no,” to anything and anyone is the first step to listening to what you really need. It’s impossible to be honest with yourself if you do not make time for yourself. Self-care isn’t a status, it’s a way of being, one that I needed to be more honest with myself about recently. Burning at both ends has been my status quo for well over a year (OK, more than 5 years). Then I remember the wise voice inside of me that wished for my health and happiness above all else. Then I remembered to sit down and listen to what I really needed.
For me, I needed more time with my friends and family and more quiet time to reset on my own. It was a balance. I also needed better food, less sleep (I was over napping… a lot), and finding time to be quiet in my own body (so I did sign up for some yoga classes). I’m not fully re-energized yet but each morning I remind myself I am my own guardian and that I’m worth it. Trauma comes, hardship comes, and our hearts, spirits, and bodies need us to care deeply and kindly for them as we navigate our own personal pain (or just a bad day). We all need a little more kindness starting with ourselves.
It is only in taking care of ourselves that we can care for others. I won’t go all oxygen mask on you but I will challenge you by asking you this, “what hurts, what is tired, and what do you need?” Turn off the noise of the outside world, tune into yourself, and find out. It’s a journey worth taking, I promise.
Last week I wrote to you about my own journey in boundary-setting as a business owner and woman. This week I’d like to dive deeper into boundaries and talk to you as both a mama and a clinician about boundaries on the home front.
As a clinician, not only do I have extensive knowledge about early childhood development but one of my areas of expertise is reducing disruptive and dangerous behaviors. I spent the first five years of my career in Applied Behavior Analysis working in early intervention and on crisis cases.
I can see my young self now, rested for the day, walking into a therapy session and teaching things like how to work through a tantrum. I worked with each family on their own values and expectations of their child, observed the needs the child was trying to get through their tantrums, and taught consistent consequences to the family as well as adaptive skills to the child. In the range of adaptive skills I often taught language (use your words), patience, tolerance to hearing ‘no,’ disappointment tolerance, and expression of feelings. Each family and child was unique but the structure of the treatment was similar and based on boundary setting.
Learning Boundary Setting as a Mom
Fast forward about 8 years to when I became a mama and my son Henry became a toddler. Henry was (and is) a strong-willed child. I remember writing in his baby journal “I didn’t know babies came out like you…” because Henry was (and is) so vocal about how he sees things and how he wants things done. As a mama, I tried to also be a BCBA and use the same tried and true treatment structure with Henry. State a boundary, follow through with the boundary, use your words, and teach new skills. Easy right? No. Hard no.
Throughout my journey into motherhood, while I love my boys above all else, I have struggled with both postpartum depression (Henry) and a toxic home environment because of domestic abuse. Toss in three boys who all have varied needs, wants, desires, and voices and the stress of setting boundaries felt impossible. You see, the thing with setting boundaries is that when you first set them children tend to resist them. Boundaries feel like a “no” to children (often they are) and the “no” feels like something for them to rebel against. As a parent, you have to be ready for the explosion as you set expectations. I’m going to be honest here; I could not weather the explosions so I became a, “yes mama”. Ugh.
Boundaries by Example
A year ago when I left domestic abuse my children & me. We were living in a psychologically frightening environment and I knew, no matter how much I wanted their dad to get help, that I couldn’t stay any longer. I set the boundary that I would not live in an abusive environment and modeled this incredibly important boundary for my children.
Yet as the last year passed my small children had so much change in their little worlds. While some of my “yes mama” tendencies went away, some remained. Want a new toy? Sure. One more piece of candy? OK. TV time? You got it. This also worked the other way and when my children behaved in ways I didn’t love (not staying in bed, dumping their food on the floor, screaming for things) I would spend time making empty threats (one more time and then…) and eventually give in. While home life was much calmer as a single mama and my children were happy with me, I knew I had to reset, buckle in, and teach boundaries.
You see, without boundaries children don’t know which behaviors are OK and which ones are not. Without boundaries, they don’t learn how to navigate unpleasant emotions and what to do with their unpleasant emotions. They also don’t learn how to behave in social situations and can become impolite, spoiled, and disruptive.
Keep in mind that little children are still children. It’s basically their job to overreact while testing boundaries early on. It’s our job as parents, however, to shape their behaviors in positive ways. Yes of course I want my children to be happy but I also want them to know how to navigate their own inner and outer worlds. Boundaries are the way to teach this.
As the fall came so did a new peace in our home. I set some simple boundaries for the boys I knew I could follow through with and continued to teach them how to navigate their emotions. I spent time making sure the values I set were in alignment with my values and that I was ready for tantrums when they came. The boundaries I set were for good listening, respect, kindness, and understanding “no.”
My children have become calmer overall after the initial, “holy crap” boundary bursts. Boundaries tell them what is OK and what is not so they don’t have to guess or use tantrums to figure a given situation out. When they don’t like the answer they know we can hold space for them to be sad or mad. It’s a win-win.
Me? I have a ton of compassion for the woman I was in early motherhood and know I was doing the very best I could at the time. I also am incredibly grateful that I’m in a space to apply my clinical skills to mommyhood. One day (and boundary) at a time.
Last week I wrote to you about integrity and my own personal experience in being unwilling to bend as a woman. I spoke about my experience not only as a businesswoman but also as a woman who has left domestic abuse and is walking through divorce. That, in my unwillingness to bend, I have had to grow a tougher skin in order to stand my sacred ground. That skin, or cloak if you will, represents my boundaries. My boundaries are how I protect myself, my work, my children, and my soul. My boundaries are also what shame has told me to ignore and each time I did I lost myself.
In writing to you about my unwillingness to bend, I also wrote to you about society’s general expectations that women should be docile and accommodating. That from a young age we are taught to put down what we actually need in order to please another person (males, teachers, adults, authorities, etc). With this social conditioning, there are no lessons on protecting your own worth, needs, and desires, leaving boundaries as never a topic that is never discussed.
Setting Boundaries Isn’t Selfish
For an incredible amount of time, I thought that boundaries were selfish, that when I placed a boundary on someone else who had a need or request I wasn’t serving humanity. Each time I placed a boundary and received backlash I measured my own worth against it. I thought that somehow my boundary was denying another person what they needed. It wasn’t until my experience leaving domestic abuse that I learned how life-saving boundaries are.
Just as many women are coming to find out that self-care isn’t selfish (I’m sure it’s a hashtag somewhere), I discovered that boundaries are also not selfish. In her work surrounding shame Brene Brown teaches us through her research that boundaries are actually compassionate. Compassionate to ourselves and the person with who we are setting boundaries. Boundaries tell us what we are willing to do in alignment with our own values (and person) and what we are not willing to do.
When a person does not respect boundaries it is not a reflection of the worth of the person setting the boundaries, it is a reflection of the person pushing your boundaries. Over the last year, I have learned that people pushing boundaries are expecting their happiness and “power,” to come from another person. Neither of these things can be true.
Boundaries & Happiness
You see, happiness is a choice we make. It is a sacred emotion that lives in our own hearts that only blooms when we remain true to ourselves. Without knowing what makes our hearts glow warmly it is impossible to know what makes us happy. Without knowing what can harm us it is also impossible to be happy. Boundaries are a lifeline to our happiness and hearts. They protect our souls.
Control is a perceived human condition, when we seek to control another person or outcome we have lost trust. We have decided that the world is hostile and that people cannot be trusted. That we must control the enemy, who is taking away our happiness so that our life can be fulfilled. Control over another human being is always about taking and never about true happiness.
As a woman, a business owner, and a survivor I have lived in both of these worlds for too long. Thinking it was somehow my job to make others happy before myself. Thinking that when someone wanted something from me (personally or professionally) it was my job to give it to them. In the biggest lesson in my life, I learned domestic abuse breaks your boundaries in a way where you lose yourself. Gaslighting was a constant theme in all of these scenarios, scenarios that were telling me I was crazy when I did not give in.
Here is what I have learned to be true in a year of healing. Boundaries are a lifeline. Whenever you do not know what to do, how to respond, or who to be in a relationship with, consult your personal values. Then, after you truthfully consult your values, you can insert a boundary. When you insert a boundary that is aligned with your values you will be at peace even if others are not. When others tell you they are uncomfortable because you have drawn a line in the sand you will be strong enough to withstand it. You will be strong enough to know that being at home in your own heart is all the strength you need.
Start Setting Your Boundaries
I have a list of boundaries I lean on now. If you don’t know where to start with boundary-setting, feel free to use a few as you put these lifelines in place for yourself:
- I will not make an excuse for harmful behavior
- I will not excuse my own harmful behavior
- My children and I come first
- I will not go against my personal values or needs to please someone else
- I will not be involved with someone whose words and actions do not align with my own
- I will not be in a relationship where I am not cared for, loved, and respected
After writing to you about my career and company, last week I detoured into my wishes for my nieces’ futures. I wrote of some of my own personal hardships as a woman in business as well as as a woman leaving domestic abuse. This week I’d like to speak to you about my perspective as a woman who is unwilling to bend, and the cost and benefits.
Women in Society
Over the past year, as I have stood my sacred ground, I have witnessed both the external and internal costs of taking a stand. Externally I have navigated (and continue to navigate) cultural stereotypes. Internally I have fought and am fighting to keep the voices at bay that tell me I am being too loud; that I must become small. I’m walking through fire and slowly learning that I am in fact fireproof.
As women, we are taught from a young age to make ourselves small and to make other people comfortable. That it is somehow our gender’s job to make men comfy. And not only should we make men comfortable but we should excuse ourselves at any point in which a person around us is hurt or offended by anything we say or do.
By societal standards the perfect woman is polite, accommodating, nurturing, and apologetic. She is beautiful, slight in her waist, and ready to smile through the adversities of life. I realize in writing this you may have a gut reaction of, “I don’t expect this of other women, or myself,” but if you ask yourself, “has society taught me this or shown me this,” I assure you the answer is yes. While we do not wear the corset of the 1800’s I guarantee you each woman reading this article has tried a diet at some point in her life. We are still wearing the expectations of our gender on a large scale even if your experience isn’t as dramatic as mine.
Internal & External Perfectionism
In the book, “Brave, Not Perfect,” the author writes about the concept of perfectionism as it affects women. On a much deeper level, she recants how from infancy through college (and even well into marriage) women are taught to be perfect and polite. Soft and docile. Desirable. In her work, she writes about overcoming the need to meet society’s standards and to be brave enough to be herself. It sounds like a small thing but as a woman, I assure you it is not. As soon as you slip off “soft and docile” the crowd in the stand wakes up. I have yet to meet a woman who is boldly herself that has not pushed away these crowds and at times even gone to battle with them. What does this battle entail?
In my experience, the battle is first and always presented internally. You know you have something to say, you know injustice is happening, and you know your soul is trying to break free. Your internal self scans the external world. Unskilled in any first attempt, when a woman boldly speaks her mind, she is almost always met with judgment. Sometimes she is met with hate. The judgment could be from an external person scolding or bullying the woman for being bold or from her own internal interpretation of how the world perceives her.
In both instances, the woman will question her own mind, her own soul, and her own desires. Was standing up, speaking out, and being herself worth the cost? The cost of losing a perceived community, relationship, place to fit in, or being ‘liked?’ In extreme cases, like domestic violence or any type of restriction of safety/liberty, the woman is hurt for speaking up.
Speaking up, unwilling to bend on who she is, the woman will learn quickly who in the world is not ready for her and who accepts her as the being she always was. The thing here is that the woman, unwilling to bend, has to accept herself as she always was. She must learn to ignore the explosions from the outside, call internal questioning a liar, and stand her sacred ground. As the wounds from the outside accumulate the woman must tend to the wounds with care and not accept the wounds as a reflection of her worth. They are battle scars from the fights.
Looking to the Future
As I wrote about my nieces I wrote with hope for a future in which no corsets (physical or mental) exist in the world. Where they are free to boldly be themselves. This goes for my three sons too. To set a future for our children when little boys and little girls are able to be who they are and one where we as parents don’t bend. We cannot accept the status quo or any type of gender stereotyping that restricts the freedom of another person. This freedom can be tiny, such as domestic division of labor, or large, such as equal representation in the legal system. We have a long way to go. But if more of us are willing to stand our ground and realize that by speaking our desires and advocating for our equality there will eventually be more people in the ring fighting for justice than the stands.
I’ve been down here a solid year, fighting for equal representation in domestic law, I’m not tired yet. I am my children’s mama, my niece’s aunt, and I am a woman unwilling to bend.