Autism Detection in Infants and Young Children

Autism Detection in Infants and Young Children

Deciding to objectively look at your child for signs of autism is hard. Thinking about your child possibly needing alternate care or schooling when that child is still a baby was not what you signed up for. But detecting early signs of Autism Spectrum Disorder (ASD) and seeking a professional diagnosis is the best way to make sure your child lives a productive and happy life.

Early signs of ASD are not easy to detect and you should always seek a professional opinion with your observations and concerns. It is not possible to diagnose your own child with ASD from reading online tests, blogs, or watching videos. The purpose of this blog is what to look for that could potentially be a valid concern for your child.

Many early signs of ASD can be confused with normal developmental behavior. All children develop at different rates. There are some behaviors that may be valid reasons for raising concern. Let’s take a look at what to look for (and what not to look for) when it comes to your infant or young child and ASD.

What are the Warning Signs of ASD in Young Children and Infants?

There are several marker behaviors that parents should take into account when observing their infant or young child developing. Again, note that none of these behaviors means your child has ASD. These are simply behaviors that are commonly associated with ASD if they persist.

The behaviors listed are from the CDC and Autism Awareness Center.

Infant Behavior Markers (up to 12 months)

  • Does not make or maintain eye contact
  • Lack of facial expressions (never smiles or frowns)
  • Does not respond to their name by 9 months
  • Uses few or no gestures
  • Does not respond to verbal cues or ‘games’
  • Lack of attempts at verbal communication

Young Child Behavior Markers (up to 24 months)

  • Does not share interests, such as found objects or toys by 15 months
  • No pointing to indicate things by 18 months
  • Lack of empathy (recognizing others are happy or sad) by 24 months
  • Delayed language, motor, or cognitive skills
  • Interested primarily in objects and not people
  • Gets upset by minor changes
  • Has unusual or extreme reactions to sensory experiences (touch, taste, smell)

Other Potential Early ASD Markers

The CDC lists the following as other marker behaviors commonly exhibited by those with ASD:

  • Preterm births or low birth weight
  • Environmental exposure to hazards like lead paint
  • Hyperactive, impulsive, and/or inattentive behavior
  • Epilepsy or seizure disorder
  • Unusual eating and sleeping habits
  • Gastrointestinal issues (e.g., constipation)
  • Unusual mood or emotional reactions
  • Anxiety, stress, or excessive worry
  • Lack of fear or more fear than expected

Remember, all of the above behaviors and characteristics are just general markers. Some children who get diagnosed with ASD won’t exhibit any of the signs listed above. Always speak to a medical professional when you are unsure of what to be concerned about.

When do the Signs of ASD Start to Show?

Autism Spectrum Disorder is hard to diagnose, as there are no medical tests that reveal it. Diagnoses are made from testing conducted by medical professionals based on behaviors, developmental milestones, and other specific criteria.

With that said, warning signs of ASD can begin to manifest as early as 9 months of age. These are warning signs, not a diagnosis, however, and need to be monitored. Keeping an eye on specific behaviors and conferring with a professional is the first step if you notice one or more marker behaviors that don’t go away as the child gets older.

The CDC notes that “ASD can sometimes be detected by 18 months or younger,” but that 24 months is the age where “a diagnosis by an experienced professional can be considered very reliable.”

When Should I Seek a Professional Opinion?

The best way to seek a professional opinion is by getting one directly from your child’s pediatrician. Pediatricians can help with screening and recommendations. Sometimes developmental disorders and signs of ASD are part of a regular wellness visit for your child. Talk to your pediatrician about specifics if you have questions or concerns.

ASD screening is recommended by many pediatricians at specific developmental intervals. If your child’s pediatrician doesn’t mention an ASD screening at a wellness visit and you have concerns, ask them about it.

The American Academy of Pediatrics (AAP) recommends developmental screening for all children at doctor wellness visits at 9 months, 18 months, and 36 months of age. The AAP also strongly recommends screening specifically for signs of ASD at 18 months and 24 months.

If your child’s pediatrician believes that your child is at risk for ASD, there are two paths you can take for a formal diagnosis and care plan: private evaluations & interventions and state-sponsored early intervention programs.

What is a Private Evaluation?

Private simply refers to private pay i.e. paid for out-of-pocket or covered by an insurance company. These evaluations allow parents to select a care program of their choice to help evaluate their child.

Private evaluations are in-depth looks at a child’s development. These evaluations are handled by a licensed medical professional like a child psychologist, speech-language pathologist, occupational therapist, developmental pediatrician, or another specialized professional

These evaluations screen your child, analyze the data, determine whether or not the child needs specialized care, and then help develop a course of action. Keep in mind that private-pay evaluations may not be covered by your insurance and can cost lots of money out-of-pocket.

If you don’t have insurance or can’t afford out-of-pocket expenses for a private ASD screening/evaluation, you should look at your state’s Early Intervention program.

What is an ASD Early Intervention?

For those who cannot take on the financial burden or private ASD testing and screening, Early Intervention (EI) programs are available from individual states. These programs help families with children under 3 years of age get screened and will create a care plan if necessary. States are required by the federal government to provide several services free of charge.

If a screening or concern from your child’s pediatrician notes several at-risk behaviors, you may be encouraged to start an EI. Early intervention screenings do not require a formal diagnosis and are conducted by federal EI specialists.

The EI specialists will determine whether or not your child requires more comprehensive care. EI specialists will recommend the type of care they believe will be the most beneficial for your child.

What Should I Do If My Young Child is Diagnosed with ASD?

Both of the paths to getting a legitimate ADS screening or evaluation listed above will provide you with a care plan. Following this care plan will get you started on helping your child get the services they need to flourish.

After an ASD diagnosis, children are commonly referred to work with one of the following types of professionals:

  • Psychologists
  • Behavioral Analysts
  • Developmental Therapists
  • Social Workers
  • Speech Therapists
  • Occupational Therapists
  • Physical Therapists

This is not a comprehensive list, it is simply to give you an idea of where your child may start in their developmental journey.

On top of your child receiving special care you, as a parent, will need to learn how to best help your child grow and develop. Talk to your child’s healthcare professional to learn what you can do to best provide the things they need most to grow.

Being active and supportive in your child’s development will help greatly in their development. Therapy for ASD shouldn’t stop when a clinic or class ends–parents should be aware of their child’s interests, behaviors, and moods to help them develop all the time.

Asking your child’s healthcare provider for information on how to learn more is the best next step you, as a parent, can take. Learn, teach, and do what you can to make sure your child grows up in a loving environment.

ABA Therapy from IABA Consultants

If you have questions regarding autism treatment with ABA therapy, we are here for you! Our goal is to make sure no family is turned away due to financial constraints. Our therapy team would love to talk to you. Find the location closest to you and give us a call. We’re here for you.

Sources

CDC Signs & Symptoms of Autism Spectrum Disorders

A New Chapter

A New Chapter

It’s been a little over a year since I started blogging. I was asked to start blogging by my marketing team to bring relevant information to our families. I was secretly waiting for this invitation because I’ve always wanted to be a writer and felt ashamed while thinking about “proper writing.” The invitation to write for you all quickly became therapy for me. The perfectionism that was holding me back was put down and writing has quickly become my favorite part of every week (outside of basement snuggles and coffee…).  

When I began writing the blog I was focused on the services provided by Instructional ABA Consultants to support families of children with autism. I also wrote as a mama of two young children and one adopted teenager to let all mamas (and papas) out there know they are not alone. That even someone like me, an experienced clinician and CEO, has struggled with motherhood, tiny humans, and teenagers. Raising other humans is no easy feat and it takes a village of support and love. My hope was that my writing created a space of belonging for parents of both neurotypical children and children with autism.

Finding Myself During the COVID-19 Pandemic

As the pandemic hit in early 2020, I was not only burdened with running a company through a pandemic. I was also burdened with sheltering in place, taking care of my children, domestic violence, and the end of my marriage. I’ve alluded to the fact that I am a survivor of domestic violence. What I have not told you, however, is that I am one of the too many women who were (or are) not safe at home. 

For a long while, I did not want to write this because I was ashamed. It’s not easy to identify domestic violence, let alone leave it behind. I was also fearful that anything and everything I wrote or said would be used in court against me. That by speaking up about my situation I would damage myself. There is much I will not say until I am ready, but please know this: I was not safe in my marriage. Neither were my children. I hold no ill will toward my ex-husband, but I absolutely believe abuse deserves accountability and that we all deserve to be safe. Writing about healing, alongside a community of support, helped show me the way out. I hope someday my writing will be a candle for others.

Shifting into a mindset where I can speak up (after 6 months of trauma-based therapy and more love than anyone can ask for) showed me that my current focus is shifting away from the original focus of my writing. I want to be able to continue to explore my own writing while not forgetting the part of my tribe who need online support for their children with autism and parenting. In a gentle way, I found it to be true that the content surrounding autism and parenting should be given to a writer who is currently more aligned with this topic. I also wanted to continue writing personally as a way to heal from trauma and live a life built in joy.

How did I decide what to do?

New Writings and Blogs

As usual, when I don’t know what to do, I went first to my gut, then to my team (tribe at home) and asked what to do.

This month my company will be splitting the blog section into two tabs. The first section will be for autism-related topics and family support. The second will be my writing, wherever that takes us. It is my hope that both blogs serve each community that receives them by being relevant to their respective topics.  

Professionally, I continue as the CEO and owner of Instructional ABA Consultants serving children and adults with disabilities regardless of funding source. We have a clear mission and a badass team. Personally, I’m embracing the author I’ve always wanted to be and hoping my words bring peace, hope, joy, and connection to others.

May we all be happy, healthy, safe, and free.

Xoxo,

Jessie

Shining a Light on Shame

Shining a Light on Shame

Last week I wrote to you about being authentic both at home and work. This is a big topic and I feel like I’ve only identified one wave in the ocean of authenticity. Today I want to write about one big way I believe we all get lost. It’s the next wave per se I’d like to ride with you on this journey. The wave I want to discuss is why we care so much about what other people say about us and how this blocks authenticity.

Teaching Our Children to Deal with Hurt and Shame

Does anyone else who grew up in the 90s remember this little phrase; sticks and stones may break my bones but words will never hurt me? I sure do and what total bullshit. During my childhood, I was picked on a lot for how I looked and behaved. I was not a model-thin child but was by no means fat. That didn’t stop the bullying and actually caused me to gain a lot of weight that then led to some awful eating disorders.

I was also socially awkward (still am!) and got made fun of when I didn’t behave like the quote-unquote cool kids. Parenting techniques of the 90s? Push it down, it doesn’t matter, move on, and focus on school. Now, while I realize most parents were doing their best, this did nothing to heal the wounds caused in the schoolyard, as well as growing wounds at home.

Fast forward to 2020 and today’s topic is still a pervasive problem. Why?

The first is that we live in a world where people, both children and adults, put each other down. The second is as a society we’re not emotionally responding and providing healing when someone is emotionally hurt on a large scale, including ourselves.

Now I know some amazing mamas and papas raising their children to live authentically, develop shame tolerance, and show up as themselves despite what the world is saying. They’re raising love warriors. We need more parents like this and children raised like this. Yet, on a large scale, dealing with hurtful words isn’t being addressed.

To address this issue, I believe we each need to take a different individual approach. This approach is to work through our own demons which cause us to stay small. We need to fill up our own cups and overflow the world with the light starting with our children. From there we’ve got some work to do because people are marginalized everywhere based on their differences.

Starting the Learning Process

So how do we do this? My sister actually posed this question to me last night. My answer? A lot of therapy. Just kidding! Well, kind of. You see, I’m 33 years old and I’ve got a long learning history of giving when I don’t have the energy to give, pushing down my own desires, personality, and labeling what’s in my heart as selfish. Was anyone else raised that way? To label their own needs as selfish? Are you unintentionally raising your children this way? Or is there another label that’s pervasive in your home?

This is shame plain and simple. Shame tells us who we are is not good enough and we should push down our desires and stay the same. It’s a tricky little bastard and why we care so much about what the world is saying.

To answer my sister’s question authentically, my true answer is to first shine a light on the problem. Shame cannot survive when we expose it but once exposed your open wounds need care and attention. It would be a wonderful thing if this shame was identified and the world wrapped its arms around us. In truth, we’re lucky to have two or three people in a lifetime who can do this; one being ourselves. For our children, this has to be us because it is a rare thing for a child to meet another child with an open heart when they are shame spiraling. When children do know this, you’re dealing with an angel on earth. We need to raise our children to be these angels! I’m Dametrius’s new mama and fully aware of the angel in my home. I’ll be a lucky mama to have Henry and Declan follow in his path.

Responding to a Shame Spiral

So how about you? How do you respond when you are in a shame spiral? Do you begin to believe either the things the world is saying about you or the terrible things you may say to yourself? Do call yourself names or agree with the insults? These can be subtle or large in nature. It could be you love math and someone tells you you’re bad at it, that your jeans don’t zip and you call yourself fat, or it could be you’re in a heterosexual marriage and fully know you are gay. Small, big–they are all wounds.

What do you do when your body is hurt? When you’ve fallen down and are bleeding. You grab a band-aid, right? You provide care to help the wound heal. It’s easy when you can see it. But when wounds are inside of us it’s easy to shove them down and ignore them. What happens then is a mess.

We begin to lose who we were born to be, can’t give what we’re designed to give to the world, and oftentimes we start taking our shit out on everyone else or ourselves. Personally, I take my shit out on myself but I know a great deal of people (sitting President anyone? The backyard bully to all of Washington) who take it out on other people.

How do we fix this pervasive problem in our own lives and thus society?

This week we’re just addressing wave number one and, if you’re brave enough, trying to dive into someone else’s wave too. This week I’d love my readers to walk alongside me and think about ways you are calling yourself names (mine is selfish, among others) and begin to unpack it. Once you see why you’re name-calling, give your great big heart a great big hug and do something to recharge. If you’re brave maybe reach out to a friend and let them know something you love about them. Or notice someone struggling and offer a listening ear. Then get ready because next week we’ve got to talk about raising love warriors at length. We’ve also got to spend some real time on people in power and marginalizing minorities, something I’ve been thinking about as I write through this week’s topic.

I don’t know about you but I refuse to raise my boys in a world that they can’t be who they are. Step one? Mama needs to be who she is.

Xoxo,
Jessie

Love Warriors

Love Warriors

It’s been two weeks since I picked up my laptop for work and writing. I thought after writing “Going Dark” that I would be fully rested and ready to conquer the world by the time this blog was due. I must have forgotten the tiny detail that I’m still a mama to three little men and was starting an out of state move. The rested part will come but clarity is with me, and for that I’m grateful.

Coming back to work made me realize it wasn’t a simple break for me. I didn’t take off to come back to the same job–I took off to prepare my heart for what’s to come. I’ve always been this way. Once I’ve learned all I need from one chapter of life I start the next chapter.

I shared a piece of this process in “Going Dark” to explain my career in the field of applied behavior analysis and autism thus far. I’ve got a gut feeling that these rest cycles will become more frequent as I fuel up inside for the next chapter because it’s a big one. I’d like to share my vision with you.

My Vision of the Future

Since childhood, I have always challenged authority and was misunderstood. A rebel, if you will. Looking back, I wasn’t a rebel, I was a misunderstood love warrior. I felt and still do feel that much of our human experience and suffering is brought on by arbitrary systems. We become so conditioned to these systems and rules we forget who we are. We become stuck.

I was stuck and broken-hearted for decades not knowing that my constant questioning was my gift. As I write this I need to remember my little lion Henry because he has this gift too. Gosh, he’s easy to love but my oh my he’s hard to parent! When I look at my sleeping son I know in my bones that if I love him fully he will not be broken-hearted or get stuck. My son will fly free. This is my vision for humanity, to fly freely with us.

This seems simple in writing but in reality, is a mountain to climb. To deconstruct the systems around us–who holds power, money, food, social conditioning, and the like–would take a lifetime of work. But if we do this together, my loves, could we deconstruct the world? I’d like to think we can and, in deconstructing it, we can rebuild it in love.

I believe every woman, man, and child can be exactly who they are and be fully loved for it. If we all stopped confining ourselves to the labels others place on us who would we be? I think the world is scared to find out and there is a reason people in power want to keep others small.

Over the past two weeks, I was really struggling with my victim story. All survivors have it and when I go there it’s tough to get out of my inner child. I believe the Spirit around us delivered me to my aunt who held me in a cocoon of love for three days. I needed her. Once I was whole and we moved into our new farm, a card literally fell out of a mantra deck onto my feet that read “I am not the victim, I am the lighthouse.” Hell yes, I am! And whatever the story being said of you, a story that may be keeping you small, you can be healed too. You are a lighthouse too.

Making My Vision of the Future a Reality

In finding the fire and light inside my sisters and brothers of peace I hope, as I’ve written before, to build a new world. You see, I’m very good at building systems that work. I bet you’ve got some wonderful talents too. I want to find those already enlightened in love and those yearning to heal. And from there find their talents and what lights their hearts on fire. I can offer my gifts to the autism world, to the world of motherhood, survivors, my readers, families, and friends. But you? Who can you offer your gifts to once you unlock them?

Today I’d like you to join the narrative. Leave a comment below, tell me your story, what you deeply love, and who you want to see live more freely, with more support, or more love. Together we’ll connect, with compassion at our core, and become Love Warriors.

Xoxo,
Jessie

P.S. If you’re wondering where all the beautiful photos for my blog come from:

Photo Credits: Amber Riveria our beautiful friend and artist

Changing the Narrative

Changing the Narrative

Last week, I wrote about our collective back to school blues. I’m still living through this; grief is a process and I don’t know that I’ll be fine for a while. In learning about all who are impacted by COVID-19, including my own children, I feel grief. Last night, I spent almost two hours on the phone with my aunt talking about homeschooling. In my heart, I want to pour every inch of my soul into Dametrius’s education. Also in my heart, I’m grieving that he may never know “normal.” From this paradox, I actually see a piece of myself. I’m going to share it with you.

That Nagging Feeling

Throughout my lifetime I have always had a nagging inside of me. The nagging says to me, “this isn’t it,” as I navigate life. While many people may equate this to anxiety and unsettledness, I know differently. This nagging inside of me is a combination of my knowledge and experiences and when I follow it I always unturn a new truth. The truths I find run the gamut from personal to professional but all of them guide me.

You see, I see the world differently, and when I follow the nagging feeling I can unpack both the loving-kindness and the lion inside of me. I think everyone has this nagging feeling inside of them and when I read “Untamed,” by Glennon Doyle it was confirmed. You may not be a lion but you know what is inside of you far better than anyone else in the world.

If we collectively listened to these nagging feelings, we could challenge ourselves and our leaders to unwind from a world based on fear and build a new one based on love.

So, back to my nagging, that piece of me that pushes me. My internal nagging has moved me through every stage of my life. It’s like a path I walk along, stopping for a while at a few spots to enjoy, fight, question, and then move on. I often meditate and see myself on a path with a deep light at the end. I know I’m walking toward that light in this life and not towards death.

During the beginning of the COVID-19 crisis, my nagging had me under its thumb. I sat in the middle of my beautiful home, with my dream career, 3 beautiful children, husband, and dear friends and I was utterly confused. How could this not be it? I had to sit and take a critical look at my situation to discover what was ‘wrong.’

What is Normal?

I was living in suburbia because the world had told me this was the goal and I listened. The world doesn’t know have my knowledge or experiences, so it occurred to me that I have been listening to the wrong authority for most of my life. Shit. Well, once I knew that I was listening to the wrong authority, a mental pandora’s box was opened in my mind. What else had I been believing as gospel because society told me it was so? Shit. Again. How can I unpack what is truly me and what the world is telling me is me? How can we all do this? And if we all do this, can we actually build a new world?

Deep inside of me, I believe the answer is “yes.” We can change the narrative. We don’t have to keep living in a world built on the foundation of broken systems and systemic disadvantages. There are solutions to our problems and those solutions are in our hearts. Believing in the goodness of people as a whole is the light I see in my meditations–where I want to go. And I want you all to come with me.

In order for me to honor my own nagging feelings, I had to thoroughly unravel my life. I sat with myself and asked, “well what now?” Answer number one? Get the hell out of suburbia, you hate it here.  While a great many people love the suburbs, I am not one of them. I need the country like I need air to breathe.

I also need my sister and my family. Like, I really need my sister and family.

I buried both of these truths while I built a business out-of-state and settled into the suburbs. So, I asked my team at Instructional ABA Consultants, “Can I move home to Ohio and still be a good leader?” I got a resounding yes, followed by a fabulous discussion about what all my leaders needed in their own environments to thrive. They shared their feelings. I had no idea what most of my team really wanted!

I hope with all my heart Ingrid makes her way to Paris while running our company! I know that woman can do it. Once I got the resounding message of “it’s OK, we’ll support your dreams because you are honoring ours,” I told my husband. His feelings aren’t there yet, but he’s working hard to find his own truths so when I change things up it won’t be too hard for us. He told me (lovingly) that if Ohio makes me happy and I need the country he’ll follow me there. I know we’ll struggle through this as he finds his own truths and I am so, so grateful that he’s standing beside me.

Saddling Up & Moving to a Farm

Once I realized these personal truths, that life could go on, I started looking for farms. And do you know what happened? We bought a horse farm. A fricking horse farm!* A realtor was supposed to line up properties for us to see when we traveled in June. One night we got sent information on the farm we ended up buying. I pulled the info up and if I had drawn a dream home when I was five years old this was it!

The universe honored my newly discovered truths and literally planted a 3-acre horse farm in my lap. The kicker? It’s only twenty minutes from my sister’s home! My dad agreed to drive over and see the property and within 24 hours, against all logic, we bought the farm (literally). It makes no sense! I can’t explain it to anyone, yet my heart is telling me loud and clear to go for it. For the first time in my life, I’m saying yes to my true feelings and believing that honoring them will guide me through all odds.

After we made the choice to move, a lot of other factors have come into play, as other factors tend to do. When you make a big decision it impacts everyone around you. I will deeply miss my dear friends here in Naperville. I’m grieving for my dear friend Dana who has been raising Henry and Declan for the last three years while Martin and I work. I don’t think kinder soul than her exists in our world and when she finds her true feelings I’m sure angels will sing.

Living two states away from her won’t be easy, yet I know I’ve gained a sister through our time together. It’s hard to change course, to follow a knowing beyond ourselves, but I know that the light promised by following my true feelings is real. Yes, I’m sad to leave and yes, I know that in following my path I’m honoring myself and getting ready to light the world on fire. To do this I need the country, quiet, and family.

On my farm, I’ll get to truly be myself. I will joyfully get eggs each morning, grow a garden, can food for the winter, sew, sit on a porch swing each night, and swim in the love of my family all around me. I will get closer to nature because I don’t like the accepted ‘speed’ of the modern world. I might even write letters to my friends. It’s a mystery to me what day-to-day activities will look like, which makes this unplanned future even more exciting for me.

I know to be true; when I honor myself I honor the world and the same is true for you. Your truth is probably not a horse farm in Ohio. Your truth also isn’t what the world has been telling you to do.

My aunt in Colorado sent me a quote, so I’ll leave you with this, “Never, ever be afraid to make some noise & get in good trouble, necessary trouble.” – John Lewis

 

Xoxo,
Jessie

 

  • *I can’t bring myself to drop the F-bomb in my blog. Maybe I’ll get worked up enough someday…